| The
National Federation of the Blind of Connecticut |
| Time
Marches On By Alfonse DeLucia |
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Tap, tap. Lucia has asked me
four times now about whether I can find the time to write something up
for The Federationist. Tap, tap. A Federationist - then again depending
on the Federationist- might advise me to "make it a priority".
Well for one thing, inspiration doesn't fly on the wings of priority,
but time certainly flies. I suppose that's as good a start as any. Ah,
and here's the N1, right on time. "Good morning driver." "Good morning." "Transfer please. Thank
you." "There's a seat behind
me, on either side." Yeah, yeah, yeah, the area
that your bosses or their bosses designated for a certain segment of the
bus traveling population is currently available. I'll tell you though,
it's become a comforting place. Cane fits right here, and I can rest my
head on my arm on this bar, and get me at least ten winks. 1 wink, 2 wink,
3- Alright then. What's the agenda for this week? 1. Write something for
The Federationist. Uh
no. Considering my average To-Do List, that
rates around number
12. "Where did you want to
get off?" "Don't worry. I'll know
when you get there." But no thanks for asking. You
drove this bus yesterday. Now what was I thinking about
or was I
trying to sleep? Vincent was so funny this morning, bouncing in his crib
and laughing up a storm. One of these days, he's going to figure out how
to vault out of there. Potty training. Crap! Did I send out the last mortgage
payment? Uh
yep. Man, I can't believe how much we're paying in diapers,
between the two of them. Leela. She is too precious. Changing her is actually
really easy. There you go! Priority # 1: Potty train the boy, I mean move
Vin's entire library into the bathroom kind of training, make camp until
we got a number two in the loo. Why do they call it a loo anyway? No.
Stop. Needless thought. Move on. Okay. Work To-Do List. "Windsor Avenue." Passing by BESB. Work priority
1: Get annual reports in order and submitted. That's moving along alright.
Staff jokes about how they see me way more now than they ever did when
I worked there. What can I say? Business is business. It's generally a
nice place to visit because I sure as hell don't live there. Sure there
are more than a few folks who are sane, genuinely competent and motivated
from the heart. As far as the rest? I think it's on some people's agendas
to live in misery, wallow in self loathing, struggle with shame, indulge
in the exertion of control unnecessarily, submit to varying levels of
psychological abuse, and hide themselves where they can make a decent
buck doing next to nothing. It's all actually quite normal. Give a bunch
of people a situation, and sooner or later, their colors -bright or dim-
will show. Speaking of agendas, I'm really
happy that the annual report forms are finally adequately accessible.
Just a few additional notes on the side in Braille, and I'm good to go.
When it was intimated that it would behoove me to get a reader/scribe
in the event of forms that required hand writing, I'm glad I held my guns,
and insisted to the contrary. Yep, agendas. Everybody does have one, don't
they? "Don't you miss reading print?" Bite me. I'll tell you:
what really sucks about working with some sighted professionals in the
field of blindness is that they get a little clingy, a little needy. Shiva
forbid you're a 38 year-old blind adult, and you reserve your right to
politely refuse assistance or limit yourself to asking for it only when
you absolutely need it. Excuse me for striving for as much independence
as is possible and indulging in the dignity of risk. I'm sorry. Is that
my agenda? I think so. Do I have a right to choose one? Why not? Everyone
else has. Oh, but you're the president of the NFB of CT! Yeah. You want
my autograph? Let me get my slate and stylus. "Putnam Highway." Already? This bus is cruising.
Agendas, hostile work environments, the differences and similarities between
service and advocacy, what comes first: the successfully rehabilitated
blind person or the job? You see, it would take too much time and staff
to get you prepared for working in Children's Services. Oh what a nice
thing to say. Seemed more than a little nervous. I liked that. Keep talking.
"Well and
" Oh and what can be spoken can be denied. How
about that other doofus, the one that we gave a scholarship to? Which
one? The funny looking one. The one who thinks he can see. Wait. Are you
being literal or figurative? The one who was given 20/20 foresight. Believe
me. It's not who you think you are. It's who they want you to be. You
mean you? No. Not me. I'm the BMF in the hood. "It's good to know
your limitations, Alfonse." Oh I know my limitations all right. The
sky, baby!!! I can only get better from here. Seriously though; those
forms are really nice
honey. No really! I'm grateful. "Central Row." "Thanks driver." Alright then. Tap, tap. Check
watch. I've got time for a coffee before I catch my U bus. Yeah baby!!!
Tap, tap. Okay so
# 1. Annual reports. #2. 403's for kids stuff.
Tap, tap. #3. Travel log for supervisor (I like her. She seems very genuine.).
#4. Generate O and M service amendments for the kids. Tap, tap. #5. Generate
five different finals. #6. Do functional vision assessments on those with.
Tap, tap. #7. Get that PC and embosser to accept each other warmly. #8.
Pack up that algebra book and send it back. Tap, tap. #9. Complete and
submit the adult support Braille training forms. #10. Don't forget the
story box request. Tap, tap #11.- "Excuse me? You're going
the wrong way." Lady thinks I think I'm heading
for the corner to cross. "Wait. You mean to tell
me that the Dunkin' Donuts that I'm going to is actually behind me?" "Oh
no. Sorry."
Okay. #11. Find the Romeo manual.
#12. Submit request for students' door-to-door for next year's Friday
VI Program plan. I hate that term visually impaired, like a part of you
is broken and the whole rest of you might as well be as incomplete as
the vision you see with. Tap, tap. Oh, that is some nice perfume, a little
lilac, a little honey. More women should be wearing that. Tap, tap. To
hell with that stuff that smells like soap. If you want to smell like
soap, then wash. Tap, tap. Resonating tap, tap. The D & D should be
right
here. In. Here we go. Anybody in line? Nope. "Can I help you sir?" "Yes. Can I have a large
iced hazel nut, black, with five sugars?" "That will be $2.26." "Thank you sir. Can I
get you a straw?" "Sure. Why not. Thanks." "Can I help you back to
the door?" "No thank you. It feels
better by myself." Dork. Why did you just say
that? I don't know. I can't be responsible for absolutely everything that
comes out of my mouth. But you're the president of the NFB of CT. Yeah,
yeah, yeah, leave a message and I'll call you back. Mmm, good coffee. Tap, tap. Man, where would
I be without this cane? You'd be with a dog? No way. All ready too many
poops to scoop. Man, why can't Vincent just bridge that
give up the
poopy gap? Tap, tap. CVS on my left. "Nice stick." "Damn right. Get a pair
of sleep shades, and you can have a try." Who the hell was that? Some
nobody. You don't have the guts stranger. Tap, tap. Here we go; Main Street.
It's a pretty warm day. Where's the old black guy who plays guitar on
this corner? Sleeping in? Lucky bastard. I wish I was an old black guy
who jams out Motown tunes with an amplified electric guitar on nice sunny
mornings. Main Street traffic moving, moving
moving. Stopped. Time
to cross. "You can cross now." I'm just going to ignore her.
That's funny. These cross walk strips weren't this vivid yesterday. Oh
yeah, state government has that surplus money to throw around these days.
I hope to God they never put one of those audio signals here. That would
be so friggin' embarrassing. Stupid agendas. But you're the president
ooh
someone's frying bacon. I'm crossing Main. Where the heck can someone
be frying bacon? Man, that's better than that chick's perfume. Tap, tap.
Mmm, another sip of coffee. Bam. Once again, perfect cross. O & M
is fun. It's really not as hard as it looks. Tap, tap. Crap! Did I submit
those forms for the kids to go canoeing? Tap, tap. Oh yeah, like a month
ago. Gold building, passed. Open area on right. Tap, tap, tap, tap. God
I hate the smell of cigarettes, but man I could use one. Tap, tap. And
here's my U bus . Is the cool Jamaican guy driving today? "Good morning." "Good morning, Mr. Elliot." Yes. I'm Mr. Elliot because
that's my stop, even though he drops me off one block north of Elliot.
This guy's too mellow. He's awesome. "What's da gude wad mon?" "My little girl turned
11 weeks today." "She getting' big?" "Little by little, every
day." Small talk finished? Good.
Keep it short. That's how I like it. What was I thinking about? I forgot.
Oh, that memory is creeping back. After Leela's Baptism at Debra's church,
Methodist, there was the rest of the service. When it came time for the
Reverend to speak his major piece of the show, he happened to choose blindness
(for the umpteenth sermon), initially framing it as persopignosia (when
one is face blind, an apparently increasingly popular type of neurological
disorder or inconvenience, depending on how aggressive or assertive you
want to be about it). Anyway, the good Reverend used the concept of blindness
as his usual metaphorical state of those of the world's other god fearing
or fearing no god at all people, those who were not seeing the same light
that happened to be shining during that service on that lovely day. Leela,
the shining light that I was most keenly aware of that day, had her very
name incorporated into the good Reverend's sermon, although he never did
come right out and explain that Leela -in Hindi- means God's divine game,
life. Yet because I know his agenda was not to clarify Leela's name in
it's eastern philosophical context, the good Reverend's agenda was to
remind all of us blind people, and Methodist light seers in the house,
that in spite of other people's faithfulness and good, humanitarian work,
they are still blind to Christian truth. He made me understand more clearly
that many of us have agendas and each of those agendas are validated by
those that follow a given agenda that has its foundations in similar experiences,
values, and motivations. "I mean, thank God that the student's visual
impairment isn't degenerative." Oh, is that the belief/perspective/agenda
of one of those teachers of the visually impaired? Why? Because it will
hurt him really bad or it'll be like a death sentence? "And believe
you me. I recommended that any unnecessary obstructions be taken away,
and that tactile, high contrasting materials be put along the kitchen
cabinets. But did his parents do it? No. I made those recommendations
three years ago. I swear, it's like they think actually making such accommodations
for their child makes them seem more blind." Whoa, deja vu. Where
have I heard that before? The thing about parents is that they have the
power to facilitate the development of a properly rehabilitated young
blind adult, but instead invest that power into reinforcing/perpetuating
their own guilt, resentment or negative perceptions of blindness so that
the child stagnates or regresses, and lives the rest of his or her life
believing "but I can't" or "I don't deserve the full, rich
life everyone else gets to enjoy." That's just sad, to miss finding
out one day that your blind son or daughter became a great lawyer or great
engineer or great anything because you chose not to encourage them because
your child's low vision or blindness was too menacing or ugly to add into
your positive perception of the child you loved into creation. That's
f@#$% up, as they say. So every other person who represents
the antithesis of the given agenda is perceived as ignorant to the truth
of the given agenda or plainly blind. So we are all built to see what
we want to see, and to be told what we want to hear. We all want to fit
in where we fit, and square pegs are not supposed to fit in round holes.
So here I am, a father, a husband, a teacher of blind students, an employee
of Hartford Public schools, a homeowner, and the president of the National
Federation of the Blind of Connecticut. And sometimes what I think I am,
during the scant moments I can set aside for myself, is a writer. It's
just that I haven't written enough to prove it. I can think of myself
more as a square peg that sort of shoves it's way into round holes until
I can crack and bend the opening, which is one of the reasons I've earned
myself a new LL Bean book bag with the initials BMF on it. The acronym;
I'll give you two guesses. There are positive perceptions, negative perceptions
and self-perceptions. Blindness is a mere inconvenience. I agree. If an
identifiably conservative advocacy interest group of blind people can
become more moderate on a given perspective, then they ought to publicly
change their tune. Whatever. Hey, I think this is my stop. Man, damned
if you're lobotomized, damned if you're moderate. "Mista' Elliot." My stop. "Have a good day Mr. Driver." Orient to the corner. Tap,
tap, tap, tap. Ready at the crossing. I love this intersection/crossing
because I find it to be one of the safest, yet due to its traffic pattern,
the actual crossing looks completely dangerous. Now go. Crossing
thinking.
What was I thinking? Bacon? No. Oh yeah'. We are working for us, for the
blind that are perceived as unmarketable and incapable, the unwritten
unspoken caps in hand, who show up here and there, and do the best they
can to navigate around and through the personalities of genuine humanitarian
square pegs and ignorant materialistic round pegs that treat us far less
thoughtfully than the humanitarians because they don't get the meanings
of demeaning or degrading because they don't see your humanity or at least
they don't see mine. Is it paranoia or some level of egomania, thinking
that God is speaking to you, offering inspiration through the thoughts
and speech of other people? Don't let them read that! They'll think you're
crazy. Shut up. I'll tell him what to write. It depends on what you believe,
I guess. So what do I believe? I believe I am a father first, tap, tap,
a husband second, tap, tap, a teacher of blind students, tap, tap, an
employee of Hartford Public Schools, tap, tap, a homeowner, tap, tap,
a seeker of my muse, tap, tap, and I believe there's an affiliate president
in there somewhere. Which are the truest of my identities? Well
the
kids are definitely mine. I really hope they stay cute. I know I signed
something when I married Deb. What did that guy on the U say the other
day? "I tied the knot with my wife, and she eventually hanged me
with it." I guess he's got his philosophy. I go to work most every
day, and like it. Good Faith Effort baby! I'm on the HPS payroll. God,
what we could save in diapers! Affiliate president? I believe a few folks
voted me in, and I imagine they can vote me right out again. Down the side of Bulkeley High,
and around the back, tap, tap. What did that kid say at that BESB thing
when I was still working there; "I was told that the two touch technique
was out of style or made you look more blind." What a knucklehead.
It would seem to me that constant contact serves the traveler as the means
to surveying a layout in order for the traveler's understanding a route,
until one felt "confident" enough to use two touch. Makes sense
to me. Tap, tap. You know, members of the Federation have been asked why
they are grateful for our organization. Now that I have time to think
about it, I am grateful for having been turned on to the types of canes
we use. And although there is more to me than meets my cane, it is the
more that brings me all together. Rear entrance, security desk, down the
hall, pass the elevator, no thank you, I prefer the stairs. Tap, tap,
tap, tap. How can we become a stronger affiliate? I need more time to
invest in it. Gee, where do I get that? I have to make it. That's what
teachers do, so they say. They have to make time, make it by saving it
from being taken up through other responsibilities or pursuits. Wait.
So where am I in all of that? Don't ask. Tap, tap, tap, tap. Here we are,
room 338, the broom closet classroom I've always dreamed about. "Good morning, Mr. DeLucia." "Good morning, folks." Lean cane in usual spot. Go
around science room table for two, deposit bag. "Hi, mister." "Hey, Lucinda." "Mister, you know that
canoeing trip we're going on." "I do. Yes. What about
it?" "I'm afraid." "Of what?" "I don't know." "Then you have nothing to be afraid of."
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| Updated January 29, 2008 |